Eimhir

Illustrative portrait of Eimhir

Eimhir is a disabled academic, working part-time as a consultant while also doing research. Before her chronic health condition, Eimhir was an internationally renowned academic, holding postdocs and receiving prizes. Whilst working abroad at a university, she fell ill with a chronic, incurable condition. She comments on the fact that participation in the project is paid – she couldn’t believe it, and finds it moving ‘that my time is valued’.

Eimhir has held a number of fixed-term contracts, with adjustments to work part-time, and now uses the money from consultancy (and occasional grant funding) to do research. She has to do research to get consultancy work. She has ‘given up’ on having an academic career, as she cannot work full time (‘The overtime issue is massive’) nor publish at the rate demanded by contemporary academia. She worries about not getting academic funding, because of exclusionary funding criteria, and the difficulty of applying for funding if not working full-time as an academic, and when not ‘early career’. In her own time she manages her disability: ‘all that has to happen before even sitting down in front of the computer’.


Eimhir’s comic: ‘Impersonating myself’

Eimhir got her PhD in 2012 and hit the ground running with her career.
[Image Description] Close up of Eimhir’s partner in kitchen while loud noises come from her bedroom.

She was awarded significant prizes and working constantly…
[Image Description] Eimhir’s partner still in kitchen while more loud noises come from her bedroom.

[Image Description] Eimhir appears, adopting victory pose and saying “I did it!”.

…until postviral chronic fatigue changed everything.

“I deserve a prize for making it out of bed!”

“You do.”
[Image Description] Eimhir’s partner with arms around her.

“For each hour I work, I’ve spent at least two being sick, or managing sickness.”
[Image Description] Eimhir, with palm facing up and partner in background.

“Some days, everything hurts me but my blanket.”
[Image Description] Eimhir sleeping comfortably.

“My condition has never been well understood.”

“There’s no treatment for it so you do everything to try and manage it and maximise your functioning.”
[Image Description] Eimhir meditating cross-legged.

“Wim Hof breathing, cold baths, infrared light therapy, drops of methylene blue…”
[Image Description] Eimhir violently shivering in the bath.

“My opiate blocker gives me 40 minutes of energy a day.”
[Image Description] Eimhir handling a pill container and reading the label of another.

“Then I also have to manage working in a university sector that doesn’t understand or accommodate me, despite my contributions.”
[Image Description] Eimhir standing in front of a building with a huge padlock on the door.

“If I’m not provided rest space at a conference, I have to improvise.”
[Image Description] Eimhir sleeping below a table while a chair barricades the door.

“I even work from oxygen therapy.”
[Image Description] Close up of Eimhir with oxygen mask.

“Colleagues don’t know when I’m emailing them from an oxygen tank.”
[Image Description] Eimhir with oxygen mask, working on laptop while others next to her struggle to stay awake.

“Able bodied people work 60 hours a week…”
[Image Description] Comparison of able bodied person and Eimhir, arrows pointing to each, and text saying “works 60 hrs for 40 hrs pay” and “works 17.5hrs for 17.5hrs pay”, respectively.

“…there’s definitely no desire in the sector to employ disabled people.”
[Image Description] Eimhir walking, very sad.

“So you end up being independent, working from home without funding.”
[Image Description] Eimhir in office chair in front of laptop in her home office.

“As part of my job I make training videos. I have to be energetic and professional.”
[Image Description] Eimhir using laptop, looking at a traffic cone logo.

[Image Description] Eimhir distraught, with recording indicator on screen.

“It takes several takes to put on the façade.”
[Image Description] Eimhir wipes face with hand.

[Image Description] Eimhir energetic, professional, with recording indicator on screen.

“I’m a hyperactive personality…”
[Image Description] Eimhir carefully explaining, sitting in chair.

“But my body isn’t anymore.”
[Image Description] Eimhir lying back in chair out of exhaustion.

“I feel like I haven’t shown you that side of myself. But that’s who I am!”
[Image Description] Close up of Eimhir looking concerned.

“When I’m presenting myself at conferences, or lectures, or interacting with people in the inbetweens…”

“…I feel like I’m impersonating myself.”

“I can’t show the full scope of my disability for fear of being marginalised even more.”
[Image Description] Eimhir, troubled, sitting in her home office.